https://www.surveymonkey.com/s/VTinfrastructure
https://www.surveymonkey.com/s/VTadmission
Investigator: Dr Richard E. Appleton , Consultant Paediatric Neurologist, Roald Dahl EEG unit, Alder Hey Children’s NHS Trust
CBR Support: Promotion and administrative support.
Investigator: Professor Béatrice Godard, PhD , Université de Montréal, , Canada,
CBR Support: Promotion and administrative support.
Investigator: Dr Stephen Ray, Department of Neurosciences, Alder Hey Children’s NHS Foundation Trust .
CBR Support: Seed funding award of £5,000
Investigator: Mr Jay Self, paediatric ophthalmologist at Southampton General Hospital and senior lecturer in ophthalmic genetics at the University of Southampton.
CBR Support: Seed funding award of £3500
Investigators: Drs Colm McGinnity and Anna Smith, Institute of Psychiatry, King’s College London
CBR Support: Networking and research site recruitment; NHS R&D approvals at centres (2013- )
Investigators: Drs Vijeya Ganesan and Dawn Saunders, UCL Institute of Child Health and Great Ormond Street Hospital
CBR Support: Governance applications, data transfer and registry management (2013- )
Investigator: Dr Shan Tang, Institute of Psychiatry, King’s College London
CBR Support: Networking and research site recruitment; NHS R&D approvals at centres, registry support (2013- )
Investigators: Dr Amy McTague and Dr Manju Kurian, Institute of Child Health, UCL.
CBR Support: Funding provided for a pilot genetic study that has already led to substantial further funding from the MRC and study extrension (2011-12)
Investigator: Dr Mike Pike, John Radcliffe Hospital, Oxford.
CBR Support: Funding, ethics and clinical trial applications – all successful (2009-2013)
Investigators: Dr Andrew Fry & Dr Daniela Pilz, Cardiff University.
CBR Support: Publicity and networking to aid patient recruitment (2010-2012). Download study information.
Web: MRC Centre for Neuropsychiatric Genetics and Genomics
Investigator: Professor Fenella Kirkham, Institute of Child Health, University College London.
CBR Support: Patient information sheets, consent forms and other documents essential to UK governance approval (2012)
Investigator: Dr Christos Zipitis, Wrightington, Wigan and Leigh NHS Foundation Trust.
CBR Support: Networking with the PUDDLS study group and MRC Human Nutrition Laboratory Cambridge, planning and protocols for biological sample preparation and transfer (2010- )
Investigators: Dr Evangeline Wassmer and Dr Michael Absoud, Birmingham Children’s Hospital.
CBR Support: Contributed to study protocol, recruitment of collaborating centres and regional NHS Trust R&D approvals (2008-2011)